# foliahealth.com > AI-optimized mirror of foliahealth.com containing 50 pages totalling 37,843 words of clean markdown content, structured data, and semantic HTML. Original source: https://foliahealth.com. Last updated: 2026-08-05T02:04:25.291Z. Each page is available as HTML (with JSON-LD structured data) and Markdown (text-only, ideal for LLMs and RAG). ## Homepage - [Folia Health App: Gain Insights & Join At-Home Research in 90 Seconds](/content/site-root.html): Folia is the free health app that helps you gain control over your chronic condition through valuable insights. Build your source of truth and join paid research programs, all from the app in just 90 seconds a day., Folia is the free health app that helps you gain control over your chronic condition through valuable insights. Build your source of truth and join paid research programs, all from the app in just 90 seconds a day. (1,049 words) ## Articles & Blog Posts - [The Life I Get to Live: Kya’s PNH Journey — Folia Health](/content/blog/2025/3/6/the-life-i-get-to-live-kyas-pnh-journey/index.html): It’s always remarkable to me when I “meet” someone on Zoom, and I can actually feel their energy exude beyond the bounds of my laptop. That’s exactly what happened when I met Kya - a dog mom, soccer coach, and quite possibly one of the most vibrant humans I’ve ever met. Speaking with her, you’d nev, (1,545 words) - [Spring is supposed to boost your mood… so why do I feel off, and how do I reset my health? — Folia Health](/content/blog/2026/3/6/reset-your-health-this-spring/index.html): If you’re coming out of winter feeling a little out of sync, you’re not alone. The shift in seasons brings the expectation of a fresh start, but it can take time for your body and routines to catch up. Winter often disrupts the habits that keep us feeling our best. Less sunlight, less movement, and, (1,117 words) - [Traveling Through Diagnoses: Bella’s Journey to PNH — Folia Health](/content/blog/2025/4/23/traveling-through-diagnoses-bellas-journey-to-pnh/index.html): For many young adults, traveling or studying abroad is a rite of passage—a chance to explore the world while stepping into independence. Bella had hoped to study abroad during college, but like so many others, the pandemic disrupted those plans and put her dream on hold. Originally from Orange Coun, (1,343 words) - [Learning to Listen: How Tracking Health Metrics Can Empower Vasculitis Patients — Folia Health](/content/blog/2025/4/16/importance-of-tracking-your-vasculitis/index.html): If there’s one thing vasculitis has taught me, it’s that paying attention to your body can help save your life. As a rare disease patient you have to learn to communicate with your doctors exactly how you are feeling. Missing a symptom or side effect can impact your treatment. Keeping tabs on all th, (1,490 words) - [Living with Lupus: Finding Balance in Friendship and Self-Care — Folia Health](/content/blog/2025/1/20/living-with-lupus-friendship-balance/index.html): According to researcher Asad S. Khan, "Your 20s are the freest years you will ever have." I’m absolutely sure he wasn’t referring to my 20 year old self being diagnosed with lupus that year, but I do understand his point. Prior to my onset of severe symptoms, I was a member of a squadron o, (767 words) - [Deciding When to Share Your Lupus Diagnosis with an Employer — Folia Health](/content/blog/2025/3/24/when-to-share-your-lupus-diagnosis-with-an-employer.html): If you live with lupus or another chronic illness, you know it often means navigating difficult decisions about disclosure to family, friends and even your employer. When one’s career is at the center of these conversations, it’s not uncommon to worry about how your employer will react, whether your, (1,497 words) - [Spoons, Swipes & Self-Worth: Dating Beyond the “I’m Too…” Narrative — Folia Health](/content/blog/2026/2/13/dating-beyond-the-im-too-narrative/index.html): Let’s be honest: Dating is hard. With a calendar not only filled with the general work demands, family and friends’ birthdays, but the slew of doctor appointments, follow-ups, it’s a challenge. Many of us are too busy worrying about picking up prescriptions to think about picking up a new boo, (996 words) - [Lauren’s Story: From Rare Disease to a Renewed Sense of Purpose — Folia Health](/content/blog/2025/8/22/laurens-story-with-igan-diagnosis/index.html): It’s true, life can change in an instant, often when you least expect it. It doesn’t matter if you’re 21 or 83, just had your first child or are heading off to college, ready to start fresh. One moment, everything feels normal. Then suddenly, your entire future looks different. That’s what happene, (1,289 words) - [Your health knowledge matters, a lot — Folia Health](/content/blog/2025/1/28/your-health-knowledge-matters/index.html): What does it mean to have the gift of good health?   You know it when you feel it. You also know when health issues have become a hindrance to your life. It’s as simple as that.  This is at the core of why, when you arrive at a medical appointment, the clinician asks how you’ve , (808 words) - [The Hormonal Flare-Up: Why Autoimmune Symptoms Could Spike Before Your Period — Folia Health](/content/blog/2024/12/26/why-autoimmune-symptoms-could-spike-before-your-period.html): The intricate dance of hormones in the body plays a big role in our health, and for people that live with autoimmune disease, this connection can feel even more significant. In my twenty plus years since receiving a Lupus diagnosis, and speaking with hundreds if not thousands of other women, there w, (1,293 words) - [Reflections on Hezzie - A beautiful life, and the people who stay with you — Folia Health](/content/blog/2025/313/hezzie-kidney-dialysis-resilience-story/index.html): When I was fifteen years old, I had my first ‘official’ role in healthcare - as a candy striper at Women’s and Children’s Hospital of Buffalo, as many weekdays during the summer as they would have me. Although I was originally slated to volunteer on the infusions unit that my brother frequented, wi, (1,082 words) - [7 PNH Resources to Help You Understand Your Illness — Folia Health](/content/blog/2025/3/24/pnh-resources-to-help-you-understand-your-illness/index.html): In 2016, when I was diagnosed with two rare blood disorders, aplastic anemia and paroxysmal nocturnal hemoglobinuria (PNH), I didn’t know where to turn. I grappled with finding resources to understand my diagnosis better. Googling my illnesses was a scary place to turn, as it displayed an ex, (883 words) - [Here’s what you need to know about the administration’s statement that ”taking Tylenol is not good” for pregnant women — Folia Health](/content/blog/2025/9/23/heres-what-you-need-to-know-about-the-administrations-statement-that-taking-tylenol-is-not-good-for-pregnant-women.html): If you haven’t heard the chatter around Tylenol and if pregnant women should or should not take it, below is a high level overview. Breaking it down The Trump administration recently announced that they are issuing a warning to doctors not to recommend acetaminophen, which is the active ingredie, (972 words) - [Your Health, Your Voice: A Guide to Self-Advocacy — Folia Health](/content/blog/2024/12/27/guide-to-self-advocacy-during-chronic-illness/index.html): Navigating the world of chronic illness can feel overwhelming from the frustrating journey toward a diagnosis to managing life after receiving one and everything in between. Self-advocacy, the ability to confidently represent your needs and concerns, becomes a vital skill. However, many of us don’t , (1,267 words) - [How to use Folia to track your diet when you have chronic kidney disease — Folia Health](/content/blog/2025/1/28/tracking-diet-for-chronic-kidney-disease/index.html): If you’ve watched our webinar with Lauren Levy , MS, RDN, CSR and a Certified Specialist in Renal Nutrition, then you know how important diet is when you have chronic kidney disease (CKD). As with all health, there are general guidelines, but everyone’s specific diet plan will look slightly diff, (488 words) - [Folia is in D.C. to represent you: What matters to patients, matters to research. — Folia Health](/content/blog/2025/6/16/what-matters-to-patients-matters-to-research-but-how-do-we-know-what-matters-to-patients.html): If a tool meant to measure the effectiveness of a therapy for patients isn’t centered around patient input, how will we know how effective that therapy truly is? Sure, it may reduce certain lab values, but does that mean it’s also reducing the real life burdens patients care about? If you’re the one, (719 words) - [Growing Through What No One Else Can See — Folia Health](/content/blog/2025/5/15/growing-through-what-no-one-else-can-see/index.html): When you’re young, you know something hurts or you don’t feel good, but it’s hard to identify patterns—to truly understand what’s going on in your body, or your mind. Honestly, it’s hard as an adult too. We tend to live status quo until something starts to impact our lives so clearly negatively that, (1,098 words) - [How to use Folia if you have high triglycerides — Folia Health](/content/blog/2025/4/17/how-to-use-folia-if-you-have-high-triglycerides/index.html): High triglycerides, like many chronic conditions, affects everyone differently. High triglycerides may manifest differently across individuals with the disease; relevant symptoms, triggers, and treatments vary!  At Folia, we want to make sure you can track whatever you want, however you wa, (539 words) - [First Year of Motherhood post BMT — Folia Health](/content/blog/2025/11/26/first-year-of-motherhood-post-bmt/index.html): There are days in life that change everything. For me, December 19 is one of them. It was the day I held my firstborn son in my arms. Two years earlier, I was unsure of my own future and was being told that motherhood was not possible for someone with my history. I was living with the weight of a PN, (765 words) - [Eczema-Friendly Sun Protection for Babies: What’s Working (and What’s Not) — Folia Health](/content/blog/2025/5/13/eczema-friendly-sun-protection-for-babies/index.html): Summer’s on its way, and like many parents of kids with eczema, we’re back in testing mode to figure out how to keep Baby T protected from the sun without triggering flare-ups. After over two years of experimenting with UV clothing and baby-safe sunscreens, we’re sharing what’s worked, what hasn’t, (430 words) - [Anxiety About Painting A Future With Lupus — Folia Health](/content/blog/2025/3/3/anxiety-about-a-future-with-lupus/index.html): I reached a significant age milestone this past year. Everyone keeps asking me if I feel any different, and, for the most part, no. My skin has just a few lines that seemed to have carved themselves out of nowhere; a random gray hair appears whenever I part my hair on the right side; and I’ve grown , (818 words) - [PNH Treatment Journeys: Real Stories from Patients — Folia Health](/content/blog/2026/3/6/treatment-routes-when-diagnosed-with-pnh-from-patients.html): Being diagnosed with a rare chronic illness like Paroxysmal Nocturnal Hemoglobinuria (PNH) can be overwhelming. It often comes with a mixture of emotions such as confusion, fear, grief, and sometimes even relief if the road to diagnosis was long. But as many people quickly learn, diagnosis is only t, (1,030 words) - [New Feature: See Patterns Faster With Calendar Filters — Folia Health](/content/blog/2026/3/20/new-feature-calendar-filters-symptom-patterns/index.html): A better way to visualize your health data in Folia At Folia, every feature we build starts the same way: with real feedback from people living with chronic and complex conditions. You’ve told us you don’t just want to track your health, you want to understand it, so you can make educated deci, (635 words) - [Does your health tracking need a spring reset? I know mine does! — Folia Health](/content/blog/2026/4/22/refresh-your-health-tracking-app-for-better-results.html): Already on Folia, but life's been a lot? Your app may need a refresh, and we're here to help. A new season is a natural moment to take stock. The light shifts, the windows come open, and most of us instinctively reset something. The closet, the inbox, the kitchen counter we stopped seeing m, (529 words) - [Margaret’s Story: Living with C3G — Folia Health](/content/blog/2025/3/24/margarets-story-living-with-c3g/index.html): A diagnosis can change everything—your routine, your plans, and the way you think about the future. The choices that come next aren’t always clear, and for many, navigating a new condition means balancing treatments with the life they want to live. Vermont resident Margaret was diagnosed with Compl, (878 words) - [How to use Folia if you have IgA Nephropathy — Folia Health](/content/blog/2024/12/26/how-to-use-folia-if-you-have-iga-nephropathy/index.html): IgA Nephropathy, like many chronic conditions, affects everyone differently. IgAN may manifest differently across individuals with the disease; relevant symptoms, triggers, and treatments vary!  At Folia, we want to make sure you can track whatever you want, however you want. One person wi, (491 words) - [From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey — Folia Health](/content/blog/2024/12/26/kevins-journey-from-fighter-pilot-dreams-to-kidney-transplant.html): The Dream of Flight As children, we look to our parents and adults and think to ourselves, What do I want to be when I grow up? As we grow and enter high school, that question becomes a bit more real. For Kevin, the answer was clear: I’m going to be a fighter pilot., (1,060 words) - [Finding Purpose in the Paths We Never Planned — Folia Health](/content/blog/2025/12/23/finding-purpose-in-the-paths-we-never-planned/index.html): How do you find inspiration in the unexpected and derive excitement from the unknown? Earlier this month, the Folia team had the privilege of meeting with Sean and learning about his journey. Sean is navigating an IgA Nephropathy (IgAN) diagnosis, keeping up with college, diving into advocacy, creat, (688 words) - [A reflection on 2024 (a letter from our CEO) — Folia Health](/content/blog/2024/12/31/a-reflection-on-2024-a-letter-from-our-ceo/index.html): Looking back on one of the more complicated - but also more fulfilling - years of my life so far, I think I’m starting to understand how nearly everything worth doing requires the strength and extreme generosity of the spirit of the people around you, and your own willingness to lean on them and be , (787 words) - ["Fashion Is for Everyone": How One Patient Advocate Is Reshaping Representation — Folia Health](/content/blog/2026/5/20/inclusive-fashion-for-cidp-and-disability/index.html): Before she pursued a path in fashion and advocacy, Jaimie was getting a Ph.D. in astrophysics. At 23, her life revolved around a carefully planned career in science. Until one day, she started feeling numbness and tingling in her feet – easy to ignore as someone who liked to sit cross-legged all day, (583 words) - [A Guide to Cultivating a Helpful Mindset with Chronic Kidney Disease — Folia Health](/content/blog/2025/1/22/guide-to-helpful-mindset-with-ckd/index.html): Living with Chronic Kidney Disease (CKD) can feel overwhelming. From managing the physical symptoms to adjusting your lifestyle, it’s natural to feel a range of emotions. Recognizing the mental health challenges that come with CKD is the first step toward finding a way forward. We recently hosted , (740 words) - [Valentine’s Day Date Ideas That Work with Your Chronic Illness — Folia Health](/content/blog/2026/2/3/valentines-day-date-ideas-that-work-with-your-chronic-illness.html): Valentine’s Day often comes with a lot of expectations. Big plans, late nights, crowded restaurants, and the pressure to make it feel special. For people living with chronic illness, those expectations can sometimes turn an exciting day into a stressful one before it even starts. The good news is t, (395 words) - [How to use Folia if you have PNH — Folia Health](/content/blog/2025/4/4/how-to-use-folia-if-you-have-pnh/index.html): The concept of Folia was inspired by our founder Nell’s mom, who religiously tracked every symptom and treatment for her son (and Nell’s brother), who has CVID. While she tracked via pen and paper, with Folia, you can track whatever you want, whenever you want, and you’re capturing your data in a st, (511 words) - [To this fresh year and the best of people — Folia Health](/content/blog/2026/1/4/fresh-year-and-the-best-of-people-in-2026/index.html): Thanks to my 4-year-old for reintroducing “ fresh ” into my vocabulary over the past month - this word can be applied to food with no condiments, leaves with no mud on them, a shirt with no paint stains…and 360-odd days with only imagined outlines of requirements, ours to design ., (783 words) - [From Track to Treatment: Brandon’s Battle with AAV — Folia Health](/content/blog/2025/5/23/from-track-to-treatment/index.html): Many of us consider ourselves athletes at some stage in childhood, but few carry that true dedication into adulthood. While we may stay active or discover new healthy passions, becoming a college athlete is a massive achievement that demands real commitment. For Brandon, running was that passion. He, (682 words) - [Tip of the Month: Track Your Blood Pressure on Folia — Folia Health](/content/blog/2025/7/10/track-your-blood-pressure-in-folia/index.html): One of the best ways we continue to improve Folia is by listening closely to YOU — the real experts of your own health journeys. After a recent conversation with an incredible IgAN warrior, she shared how life-changing it’s been to consistently track her blood pressure in the app. Before Folia, she, (408 words) - [Vicky’s Journey: Balancing Motherhood, Career, and Life with Lupus — Folia Health](/content/blog/2025/1/29/balancing-motherhood-career-and-lupus/index.html): For many with chronic illnesses, it’s often hard to see past your condition, especially during flare-ups. At the same time, it’s common to minimize a diagnosis in an effort not to burden friends and family. This can lead to feelings of isolation and loneliness. When I sat down with Victoria (aka Vic, (544 words) - [Feature Update: Your Simple Report Just Got Better — Folia Health](/content/blog/2026/5/20/feature-update-simple-report/index.html): Tracking your health is important, but understanding what you’ve tracked matters too. That’s where Simple Report comes in. Simple Report gives you a clear, organized view of everything you’ve logged in Folia, all in one place. Whether you want to review symptoms, treatments, notes, flares, or t, (405 words) - [Traveling This Summer with Chronic Illness: Tips to Stay Well and Enjoy the Trip — Folia Health](/content/blog/2025/7/10/traveling-this-summer-with-chronic-illness/index.html): Summer travel is exciting — but if you live with a chronic illness, it often requires a little extra planning. Whether you’re hitting the road, flying across the country, or just visiting family a few hours away, managing your health while traveling is key to enjoying your time away. Here are some , (462 words) - [9 Years of Folia Health — Folia Health](/content/blog/2025/3/17/9-years-of-folia-health/index.html): Yesterday marked nine years since Folia Health was incorporated, and in nearly a decade, we’ve been busy. What started as a simple idea—making it easier for patients and caregivers to track their health—has grown into something much bigger., (456 words) - [Chronic Illness Essentials: Must-Haves for Low Spoons, School Days, and Social Plans — Folia Health](/content/blog/2025/7/9/chronic-illness-essentials-for-low-spoons/index.html): Living with chronic illness means your needs shift from day to day. Some days you’re managing symptoms minute by minute. Other days, you're trying to keep up with class, work, or life. And when you do have energy for a social plan? You need the right tools to protect it. In honor of Chronic Illness, (408 words) - [Regeneron bought 23andMe…what does this really mean? — Folia Health](/content/blog/2025/5/23/regeneron-bought-23andmewhat-does-this-really-mean/index.html): We've been talking a lot this week about why the sale of 23andMe to Regeneron matters - a lot. [TL;DR Transparency, traceability, and participant-level control aren’t just ideals—it's what everyone's looking for, and it's already happening at Folia.] This isn’t just a story about acquisition - , (503 words) - [Women’s Health Deserves More: Addressing the Gender Gap in Research — Folia Health](/content/blog/2025/3/8/womens-health-gender-gap-research/index.html): When we think of gender gaps, we often think of employment, pay, or legislation. One thing that may not come to mind is healthcare research. Gender blindness exists heavily in the healthcare field and can have negative repercussions for women’s health. There’s one thing we can all agree on—the fema, (397 words) - [How to Keep Track of Weather-Related Flare Triggers — Folia Health](/content/blog/2025/6/5/track-weather-related-triggers/index.html): For many people living with chronic conditions, changes in the weather can lead to health flares that are hard to manage. Whether it’s a rise in humidity, a drop in temperature, or an intense sunny day, weather-related flare-ups can make managing your condition even more complex. While we can’t cont, (316 words) - [How to Track Your Seasonal Allergies on Folia — Folia Health](/content/blog/2025/5/8/add-seasonal-allergies-on-folia/index.html): Spring has arrived, and that means blooming flowers, warmer days — and for many of us, a return of seasonal allergies. Sneezing, congestion, itchy eyes... you know the drill. If you’re managing a chronic condition, it’s super helpful to track how your allergies may be affecting your baseline. Thank, (354 words) - [The Importance of Understanding the Lasting Effects of Asbestos Exposure — Folia Health](/content/blog/2025/2/25/asbestos-exposure-resources/index.html): In light of the recent wildfires in Los Angeles, concerns about asbestos exposure have grown, especially for first responders, cleanup crews, and residents returning to affected areas. When asbestos-containing materials are disturbed, they can release harmful fibers into the air, posing serious long, (384 words) - [How I use Folia to see if my menstrual cycle is causing flare-ups — Folia Health](/content/blog/2025/1/28/menstrual-cycle-flare-up-tracking/index.html): Whether you track your period or simply know it’s on the way from symptoms, it’s something we typically experience in a very cyclical pattern. You may have a few days of discomfort leading up to it’s impending arrival, only to have resolve in a week’s time and start the cycle over again. However, if, (395 words) - [Folia at DIA in Washington, D.C.: Advancing patient collaboration in research — Folia Health](/content/blog/2025/6/27/it-is-possible-to-measure-patient-data-in-a-meaningful-way-for-researchers-trust-us-weve-been-doing-it-for-9-years.html): How will researchers know what their therapies should target if they don’t ask patients what they really care about? The short answer is they won’t. Researchers are developing treatments for patients, so the logical solution is to ask patients what they want these treatments to address . However, (385 words) - [Advice to the newly diagnosed — Folia Health](/content/blog/2026/3/6/advice-to-the-newly-diagnosed-chronic-illness/index.html): This Rare Disease Day, we're talking to the people who get it. The people living with rare and complex conditions. The Folia Health community. When you live it every day, you learn what helps, what hurts, what you wish someone had told you sooner, and the advice someone shared along the way that stu, (379 words) ## Resources - [Full Page Index](/index.html): Browse all cached pages with rich metadata - [About This Cache](/about.html): Methodology, technical details, and usage guidelines - [XML Sitemap](/sitemap.xml): Machine-readable sitemap for crawler discovery - [Robots.txt](/robots.txt): Crawler directives